Navigating Life with Multiple Sclerosis (Neurology Now Books), by Kathleen Costello, Ben W Thrower, Barbara S Giesser
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Navigating Life with Multiple Sclerosis (Neurology Now Books), by Kathleen Costello, Ben W Thrower, Barbara S Giesser
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Navigating Life with Multiple Sclerosis will serve as a practical guide for meeting the challenges of this life-long disease. MS may cause a myriad of symptoms and varies greatly from person to person. The authors demystify MS and offer practical solutions and guidance based upon their extensive combined clinical and research experience. The book tackles many of the common symptoms experienced by the person with MS and looks into the future to explore where research is headed. If you are newly diagnosed or have been living with MS for years, this book is an invaluable guide.
Navigating Life with Multiple Sclerosis (Neurology Now Books), by Kathleen Costello, Ben W Thrower, Barbara S Giesser - Amazon Sales Rank: #810737 in Books
- Brand: Oxford University Press
- Published on: 2015-09-01
- Released on: 2015-09-01
- Original language: English
- Number of items: 1
- Dimensions: 5.50" h x .50" w x 8.00" l, .0 pounds
- Binding: Paperback
- 208 pages
Navigating Life with Multiple Sclerosis (Neurology Now Books), by Kathleen Costello, Ben W Thrower, Barbara S Giesser Review "Navigating Life with MS is authored by Dr. Barbara Giesser, a highly respected neurologist who has set a high bar of comprehensive and collaborative care in MS as a professional standard. This book, whose topics range from a definition of the disease, to the diagnostic and treatment process, lifestyle issues such as reproduction and self-efficacy, also provides the reader with a look into the future. Although targeted toward the lay reader, healthcare professionals will find this a remarkable teaching tool for novices in the field as well as patients and their families. This book is a MUST for a library on multiple sclerosis and is a model for other such works on long-term chronic illnesses." --June Halper, MSN, APN-C, MSCN, FAAN, Adult Nurse Practitioner, Chief Executive Officer, Consortium of MS Centers, Hackensack, NJ; and Executive Director, International Organization of Multiple Sclerosis Nurses
"Kathy Costello, Ben Thrower, and Barbara Giesser, have produced a book for people with MS, which is about the facts, nothing but the facts. This book allows the reader to get started on the right path and navigate the current MS map to live a more fulfilling life despite the diagnosis. It is well written and will convert a non-medically trained person to one with fluency about MS. Managing MS is about disease management, symptom management, and person (psychological) management. The authors have hit on each and have explained the use of pharmacological (drug) therapies, rehabilitative therapies, and psychological, mental health therapies with a dash of practical financial management. This is an essential resource for those interested in multiple sclerosis for any reason. My hat is off to the authors!" --Randall T. Schapiro, MD, FAAN, President, The Schapiro MS Advisory Group; and Clinical Professor of Neurology (Retired), University of Minnesota, Minneapolis
"This book will be equally handy to individuals with MS, to family members, and to healthcare providers as it's written with all of these groups in mind." --Everyday Health
"Navigating Life With Multiple Sclerosis is without a doubt a must have read for anyone newly diagnosed with multiple sclerosis. For those already diagnosed with MS the book offers a clear and concise up to date resource complete with a glossary that will most certainly result in you having a better knowledge of the state of multiple sclerosis as it is today. ... For a family with a loved one recently diagnosed with MS this is simply a MUST READ, there is just no question about it." --MS Unites
"The authors provide a succinct and easy-to-read summary of the important biomedical points in the literature... Although this topic may be upsetting for those who have minimal symptoms or are newly diagnosed, it is often not covered and is essential information. This further demonstrates the authors' dedication to providing a comprehensive guidebook to those who are living with MS and their families." --PsycCRITIQUES
About the Author Kathleen Costello, MS, ANP-BC, MSCNAssociate Vice President, Clinical Care National Multiple Sclerosis SocietyNew York, NY Nurse PractitionerJohns Hopkins Multiple Sclerosis CenterBaltimore, MDBen W. Thrower, MDMedical DirectorAndrew C. Carlos Multiple Sclerosis Institute at Shepherd CenterAtlanta, GABarbara S. Giesser, MDClinical Director, UCLA Multiple Sclerosis ProgramDavid Geffen UCLA School of MedicineLos Angeles, CA
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Most helpful customer reviews
2 of 2 people found the following review helpful. Very informative book on Multiple Sclerosis!!! By Amazon Customer Navigating Life with Multiple Sclerosis by Dr. Barbara Giesser, Dr. Ben Thrower and Kathleen Costello is an excellent book for patients who are newly diagnosed with MS or those who have had MS for some time. I am an MS Certified Nurse working with MS patients every day and they each come to me with differing levels of knowledge and misconceptions. I encourage my patients to empower themselves with knowledge from reliable sources. When patients know and understand their MS, MS Symptoms and the drugs that slow relapses, they feel empowered and are often less stressed as compared to those patients who do not take charge of educating themselves. There are good books out there for MS but this one is top notch!!! This book can provide an overall education to the newly diagnosed patient or serve as a reference book to someone who has had MS for a while and just needs to refresh their knowledge. Thank you for providing this very informative and invaluable book for our MS patients! Diana H. RN,BSN,MSCN
1 of 1 people found the following review helpful. Great overall information By Cherie C. Binns MSCN Ben Thrower and Kathleen costello do a wonderful job of demystifying a difficult disease and making it more accessible and easily managed
1 of 2 people found the following review helpful. This book contains incorrect information! Read with caution! By Jason I make it a practice to not give a book a one star review. However, I was diagnosed with MS two years ago, and what I have learned is staggering. Books like these are terribly detrimental to people with MS. Please read with caution. There is good information in this book on traditional treatments; however, the discussion on new treatments such as Vitamin D therapy and HSCT (stem cell) treatment is actually wrong to the point of dishonesty. As an example: Dr. Richard Burt's study on HSCT with Northwestern Memorial Hospital in Chicago has shown excellent efficacy in treating relapse remitting MS. From a January 20th, 2015 article in JAMA:"Outcome analysis was available for 145 patients with an average follow-up of 2.5 years. On a measure of disability (Expanded Disability Status Scale [EDSS] score), there was significant improvement in 41 patients (50 percent of patients tested at 2 years) and in 23 patients (64 percent of patients tested at 4 years). “To our knowledge, this is the first report of significant and sustained improvement in the EDSS score following any treatment for MS,” the authors write.Receipt of HSCT was also associated with improvement in physical function, cognitive function and quality of life. There was also a reduction on another measure of clinical disease severity, volume of brain lesions associated with MS seen on magnetic resonance imaging (MRI). Four-year relapse-free survival was 80 percent and progression-free survival was 87 percent." (--end JAMA excerpt.)When we compare this to what is said in Navigating Life with Multiple Sclerosis on HSCT we find a problem: The author's write, "Early trials have shown some success in shutting down inflammation and relapses in people with aggressive forms of MS. This procedure has not been show to reverse established disability, however."To say HSCT shows no improvement is flat-out untrue. As noted above, a well designed clinical trial shows 80 percent progression free survival (what this book describes as 'some' which is extremely misleading) and half + of the treated patients showed 'significant' improvement in EDSS scores. Note that other HSCT trials globally are showing similar results.This is also true of the Swank diet, which was run from the 40's to 80's and showed a diet low in saturated fats can have a marked impact on disease progression. This book called this trial 'poorly designed' which it was not. They state there was no control (everyone else in the world who had MS at the time as there were no other therapies during this time can serve as a control. Also, the author's fail to note that many people fell off the Swank diet. Those who did experienced an normal disease progression. This alone can function as a kind of control.) And that it wasn't double blinded, but double blinding was not part of clinical trials anywhere during this era. The key point is that out of 144 people, all showed significant reduction in disease progression. This book states: "For example, there was no control group who did not follow the diet, so it is not known if the improvements would have occurred anyway, as sometimes happens in persons with MS." Are you kidding me?!?! That is ridiculous! The improvement of MS on its own is quite an exception, and the authors of this book are suggesting that Dr. Swank was potentially lucky enough to pick 144 people who all had that spontaneous improvement or deceleration in disease progression. Using that logic to discount such an important study is ridiculous.Note that with MS there are many sources who are denying these scientifically proven treatments. Why? Some would argue that it takes too much dedication on the part of the patient and western medicine has given up on that level of patient involvement. Others would note that HSCT has no ability to be patented as it is a one time treatment, diets have no medical profit, and a patient on MS medications makes pharma companies $40,000 + a year. I'm not aligning myself with any one reason, I just know the information contained within this book is inaccurate.There is so much that someone who has been diagnosed with MS can do, and they need HOPE not misinformation. This book has critical errors which need to be highlighted. As far as I go... I have followed every scientific study I could from Vitamin D supplementation to meditation to diet and I now have two years with absolutely no disease activity. It might be that I am just lucky (or maybe my Copaxone is just working 400% better for me than the average person. That's possible. But still, can't hurt to eat right, exercise, and make sure I'm not Vitamin D deficient.If you want a good book on MS, one with hope and open mindedness, yet still being based on scientific studies, avoid this one and get Overcoming Multiple Sclerosis by George Jelinek.
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Navigating Life with Multiple Sclerosis (Neurology Now Books), by Kathleen Costello, Ben W Thrower, Barbara S Giesser
